One week.  I have kept a countdown since the day I made the follow up neurology appointment.  Now it is only a week away.  When I made the appointment 3 months ago I envisioned myself walking into the appointment with and all the things I would know, but had yet to learn.  A lot of living has happened in the last 3 months, yet I can't remember most of it.  It has been a blur of joy and sadness.  My gut tells me we will get a diagnosis next Tuesday when we meet with Dr. Rosen.  However, I don't think a diagnosis is going to mean much to me.  I still won't know why, I still won't have a cure, I won't change what I do or say.  As much as it won't change anything, it will change everything.  My sweet girl will have a life long label.  It will follow her for the rest of her life, whether she learns to walk and talk like everyone else or not.  And again, I am trying to predict the future.
Today was rainy.  Jim, Madeline, McKinley and I watched movies with rotating naps.  Crosby came home from school and immediately went into big brother mode, making everyone remember how much they love him!  We needed this after his morning of throwing yogurt and coloring on the couch.  It was a therapeutic afternoon.  The 5 of us on the floor surrounded by cars, Legos, and baby toys for two hours.  It was heavenly.