Monday, May 7, 2012

Just wrote the short version of McKinley's story for the first time.  Phew.  Here it is...
On Valentine's Day of 2011 I found out I was pregnant with twins. I will never forget the day, because my heart shaped uterus framed the "gummy bear" looking babies so well in the ultrasound. They were born at 38 weeks via c-section and everything looked perfect. My 2.5 year old son referred to them as his "babes". Madeline and McKinley left the hospital with me two days later. A week after birth McKinley began to cry the shrillest cry I had ever heard and she rarely stopped. We tried 3 different reflux medications to no avail. It was clear that something wasn't right. She is 8 months old now and still has yet to reach a milestone and after an MRI, EEG and blood work, we are still searching for answers as to why she is delayed. McKinley has all the symptoms of Cerebral Palsy, but no one is willing to give us the diagnosis because of her age. She has seen several specialist and is visited by 4 members of the Early Intervention team a week. McKinley has seen more pain and struggle in her short 8 months than I had in the 31 years before her birth. 
My heart was broken when I finally accepted that she has special needs. I felt that I had failed her brother, because the wonderful life he had come to know would never be the same and he had no idea. I worried that her sister would always feel ashamed of her own accomplishments. I hurt for my husband who wants to fix everything. Mostly though, I was sad for myself. The identical twins I thought I was getting, their special bond, their ability to trick people by switching names, the youtube video of twins chatting "dada" in the kitchen, that isn't going to happen with my girls. I quit my job shortly after I accepted McKinleys differences and am now a full time mom.
It wasn't until I read "Bloom" that I was able to put my pain away. I was finally able to see the spirit and hope in my baby girls smile, instead of always seeing what is "wrong". I started taking the girls out in public, letting other people hold her, I stopped apologizing and explaining McKinley to everyone. She has a lot of life to live and I need to stop writing a sad story for her. I am her advocate, her rock, her therapist, her mother and I have faith that she will bring love into the lives of so many!

5 comments:

  1. Beautiful Emily! McKinley is going to make us all better. She is an amazing little girl and she has the best sister, brother, mommy, and daddy any girl could ask for! I am so proud of you and your dedication to your children. Now, we just need to get rid of Ohio, Indiana, Illinois, Pennsylvania, and of course MISSOURI so that we can be there (physically) for you guys! We are here 24/7 by phone, text, or internet :). Love you all!!! xoxo

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  2. ps - i made that tag name a long time ago on another blog...if i were to write a name tonight, there would definitely not be any angels in the name, more like 3 little sh*ts!

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    1. Thanks Ang! Crosby colored on our couch with permanent marker this morning so I am thinking my name would be 2angelsandalittlesh*t.

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    2. you guys are cracking up the Flanagans right now!!!!

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  3. Em - I just read your post and it brought tears to my eyes!! SOOOO beautiful! Your kids are sooooooo lucky to have such a wonderful, smart, strong and supportive Mom!! I'm so glad you started a blog! Little McKinley (and your family) is in our thoughts and prayers. We love you guys and wish we could see you more often!!
    Kara

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